The “New Chapter” Began – the first year.

~   We had our little girl back home . . . but boy oh boy did things change.   ~

The calendar quickly filled to overflowing:

Doctor visits,

blood work scheduled weekly,

medication routines,

learning how to cope with seizures,

learning about therapy

–    –  what was  available, when, where, how often, what would it do to help her?

–    –    –    no development . . . small development . . . set backs . . .

 

Days ran into weeks, ran into months, turned into years. Relentless, unending questions. WP_20140503_00220140503121843

Our poor son, bless his heart, at age eight ended up being a co-caregiver.

He learned how to handle her when a seizure happened.

He learned how to properly hold her to help calm down after an exhausting episode.

He learned about medications.

He learned about exercises.

He learned about life – the hard way.

He never complained! He loved his little sister, and nothing was too difficult for him to pitch in and help with!

As she grew, we discovered that half of her brain was ‘translucent’ – plain and simple – it had vanished, eaten away by whatever it was that began this whole nightmare in our lives. We were told that she would NOT live to be a year! So at 11 months (silly me, believing what the doctors said, even though I knew that God gave her back to me, why would He allow her to die?),we had portraits done. This one is the largest and it still hangs in my bedroom today:

WP_20140503_004

 

It had hung in the dining room of my in-laws for many years before they went Home to be with the Lord. It is really quite large, but we felt the need to have it as a reminder – always – of our sweet Mariah.

I had dreams over and over again about planning her funeral. Little white casket with rosebuds on it. Deep pink satin for her  to lay. A beautiful wedding gown for her to be  dressed in to meet her Bridegroom – Jesus. (Macabre, I know, but that was my life for several months approaching her 1st birthday.)

Her birthday came and went. Sweet little thing. You could almost catch us holding our breath waiting for the inevitable. But – praise be to God – it never came.

 

 

 

 

(c) klh 4Given Ministries

One comment on “The “New Chapter” Began – the first year.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

God Notes

Notes on things God is telling me to tell you!

Daring 2 Make a Difference

Walking in the ways of Christ we CAN make a difference!

Talking To My Weight Loss Counselor - God

My weight loss counseling sessions with God

GLA NEWS | Shines A light On CHAOS

Walking in the Favor Of God

Reflections From the Heart

From my heart to yours.

NotoftheNorm.

Love, Encouragement, Truth

#ToBeLikeJesus

Being Conformed to His Image

Otrazhenie

Reflection

His Truth Will Set You Free

Listen to what Jesus says; “Then you will know the truth, and the truth will set you free.” (John 8:32)

Sherline's Watchu Thinkin' Blog

The journey of self-discovery begins

Pat's Letters God Inspired

Galatians 2:16 Knowing that a man is not justified by the works of the law ,but by faith in Jesus Christ. For no one will ever be saved by obeying the law.

I'm Done Being The Fat Girl

A 30-something girl on a weight loss journey who's dealing with life, love, and family one day at a time.

talinorfali

Don't ever change yourself to impress someone, cause they should be impressed that you don't change to please others -- When you are going through something hard and wonder where God is, always remember that the teacher is always quiet during a test --- Unknown

Self Reflection

Genesis 1:27 "So God created people in his own image; God patterned them after Himself"

Joseyphina's World

Born to Write, On a Mission to Inspire

Spirituality Exploration Today

Delving into the cross roads of rationality and intuition

Word Walkers

The Exodus Journey

Kindness Blog

Kindness Images, Videos, True Life Stories, Quotes, Personal Reflections and Meditations.

%d bloggers like this: